DCC FAQ

The debra Care Conference (formerly the Patient Care Conference) is a national gathering created specifically for the Epidermolysis Bullosa (EB) Community. Held every two years in different cities across the U.S., the event brings together individuals with EB, their families, advocates, and care providers for learning, connection, and collaboration.

Attendees have the opportunity to hear directly from leading clinicians, academic researchers, and organizations working toward improved treatments and a cure for EB. Bandage manufacturers and distributors also participate, offering hands-on demonstrations of products and care solutions.

Just as important, the conference creates meaningful space for the EB Community to meet new families, reconnect with long-time friends, and spend time together. debra of America hosts playrooms and engaging activities for children, along with opportunities for the entire family to socialize.

The debra Care Conference (DCC) benefits the entire EB Community and offers learning opportunities for individuals and families as well as medical professionals interested in learning more about EB care. Sessions cover topics that aid in the overall health and well-being of an individual with EB. There is also time built-in to network, connect and have fun with peers! Whether you and your family are attending for the first time, or have attended many of our conferences in the past, you will find the DCC rewarding.

The 2026 debra Care Conference will be held Sunday, July 26 – Wednesday, July 29 (with hotel stays through Thursday, July 30) at the Los Angeles Airport Marriott, conveniently located near LAX for easy travel access.

Venue:
Los Angeles Airport Marriott
5855 W Century Blvd
Los Angeles, CA 90045

The conference is scheduled in late July to accommodate varying school calendars across the country, and the selected venue ensures an easily reachable, cost-effective option for attendees. The venue serves as both hotel and our conference meeting space, and the property offers fully indoor, temperature-controlled meeting space and guest rooms.

Our conference registration includes hotel accommodations and arrangements are made through debra of America directly.

Registration will open early 2026.

Your hotel stay is included when register for the conference. debra of America handles the hotel booking for you.

The Los Angeles Airport Marriott serves as both our conference center and hotel.

As long as you are comfortable, we are happy! There is no specific dress code for the conference. Please be sure to avoid attire with any inappropriate language or images. Check out the debra Online Shop if you would like to order EB awareness related apparel prior to the conference.

Visit the debra Shop 
 

Pricing will be finalized and announced in advance of the registration opening date.

Registration includes hotel stay (1 room for up to 4 people), and all conference activities, including educational sessions, social events, children's play zone + activities and meals (buffet style).

The closest airport is LAX, just a few minutes from the hotel. The hotel provides a free airport shuttle.

If you are driving, the hotel offers self-parking for a discounted fee for debra of America guests. This fee is charged by the hotel and not covered under registration fees.

Yes, the following meals will be covered, and is included in the registration cost:

Sunday, July 26: Dinner

Monday, July 27: Breakfast, Lunch, Dinner

Tuesday, July 28: Breakfast, Lunch, Dinner

Wednesday, July 29: Breakfast, Lunch, Dinner

To ensure we accommodate all attendees, please notify us via email at DCC@debra.org if you have any dietary restrictions or religious dietary requirements. Thank you for your cooperation.

In order for us to properly assist and serve all those attending our conference, every member of your party must be registered. Registration allows us to plan the conference sessions appropriately, pay for provided meals and other associated events, and track conference attendance.

Registration for each member of your party is mandatory. Each attendee will receive their all-entry pass (conference badge) to the conference and related activities upon check-in at the DCC. Conference badges will be required to be worn at the conference at all times.
 

Coming soon.

Coming soon.

Registration for the conference includes hotel stay, so your hotel room will be paid for when you check-in. The hotel will still request your personal credit card to be presented during check-in. This credit card number is put on file only for any possible incidentals charges you make during your stay. This includes amenities such as room service or long-distance phone calls. Therefore, you must bring a personal credit card to the hotel for these standard purposes.

debra of America is able to cancel your registration and provide a refund up until July 1, 2026 (credit card charges incurred for cancellation process will be charged). Beyond that date, we are unable to give refunds because costs relating to hotel stays, meals, and other conference-related expenses have already been incurred.  

Coming soon.

The 2026 debra Care Conference will take place at the Los Angeles Airport Marriott, a fully indoor, temperature-controlled hotel and conference center located just minutes from LAX. The property offers spacious meeting rooms, comfortable guest accommodations, multiple onsite dining options, and easy access for families traveling from across the country.

The hotel is designed for convenience, with elevators, wide hallways, and accessible room layouts that support the diverse needs of the EB Community. Attendees will be able to move between sleeping rooms, sessions, meal spaces, and event activities without needing to go outdoors.

This hotel allows up to 4 people per one hotel room (a fifth person is allowed ONLY if they are an infant that will be sleeping in a crib).

After you register, please email dcc@debra.org to let us know you’d like adjoining rooms and the names of the primary registrant of each room, and we will submit your request. The hotel will do their best to accommodate this request.

If you require rooms earlier or later than the dates included in our room block, please contact dcc@debra.org to coordinate your longer stay.

Yes, the hotel offers self-parking for a nominal fee to debra Care Conference guests.

The closest airport is Los Angeles International Airport (LAX), located just a few minutes from the Los Angeles Airport Marriott. The hotel provides a complimentary airport shuttle, running regularly between LAX and the property for easy, stress-free transportation.

Yes, the hotel provides a complimentary airport shuttle, running regularly between LAX and the property for easy, stress-free transportation.

Coming soon.

Coming soon.

If you are interested in presenting at the 2026 debra Care Conference, please email DCC@debra.org.

Please email DCC@debra.org if you are interested in presenting or speaking at the conference.

Coming soon. Please email DCC@debra.org for more information.

This conference would not be possible without the generous support of our sponsors. Please email DCC@debra.org if you are interested in sponsoring the 2026 DCC.

Definitely! Merchandise from the debra Shop will be available for purchase on-site at the conference.

Purchase debra Shop items now

Yes! Our conference would not be possible without the support of our generous donors.

Make a donation 
 

Absolutely! Our conference would not be possible without the generous contribution of volunteer time and talents. Please email DCC@debra.org to sign-up.

Please note, we cannot offer discounted registration rates, free hotel rooms or travel aid for volunteers. 

Use our special hashtags #debraCareConference and #WeFightEB when you’re sharing your comments, questions, photos, and stories about the conference on social media.  

Follow us of Facebook 

Follow us on Twitter

Follow us on Instagram